Princesa Lara
Lara is a charming three-year-old girl. She was diagnosed with vanishing white matter disease (VWM) in 2019 at two and a half years old after we noticed that after a fall the walk was a little different.
The diagnosis was quick but the pain in my mother’s heart continues every day.
Later, after a laryngitis with fever and another fall, Lara stopped walking.
She does physical therapy, speech therapy, occupational therapy and hydrotherapy and many vitamin supplements.
Lara continues to be a happy and very loving child and we live in the hope that a treatment will help her.
Written by Lara’s mom.
To follow Princesa Lara on facebook see: https://www.facebook.com/Princesa-Lara-100212224929051/\
September is Leukodystrophy Awareness Month. Do what you can…spread awareness. Share the stories. Talk about them with friends and family.
Whether you give time, money, effort or love… these kids need our help.
Small amounts of money can have outsized impact in the world of#VanishingWhiteMatterDisease (VWM). Because #leukodystrophies are so rare, therefore research relies heavily on private donations. Even if it’s a small amount, please consider donating to VWM Research.
